Join me on this journey of
    love, heartbreak & malevolence.
Traveling In and Out of Heaven
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This is the story of my brother’s five-month battle against esophageal cancer, encompassing: the profound love between a brother and sister as they struggle with the torment of an unbearable illness; the love and support of family and friends; and the treacherous betrayal of a daughter. She exploited her next-of-kin status, threatening to end Allan’s life when he still had a chance of surviving, to inherit his Life Insurance Trust.  And then she did the unspeakable…

 

It is with heartfelt forewarning, that I advise readers to ascertain end-of-life options, to avoid the adjunct anguish that engulfed my life as my brother’s medical proxy (which he had inadvertently forgot to sign), and as Executor of his Estate. The poignant and agonizing issues in this narrative are circumstances that readers could encounter at some point in their lifetime: an unsigned medical proxy; next-of-kin power over medical decisions; life support; and a duplicitous legal petition. Join me on this journey of love, heartbreak, and malevolence. Once you start reading, you won’t be able to stop!

     

                                                 

Allan's Team of Doctors

Traveling In and Out of Heaven Poem

There wasn't a monetary value for taken the time to know him, to appreciate him, to love him. She cared more about the costs than the things that can't be bought. She exploited his survival and death to manipulate the life insurance trust. She knew the price of everything but the value of nothing. And that will never change until the end of time.

                  
 
 
 
 
Chapter Preview

“Would You Please Shut-Up! We’re Trying To Save Your Life!”

 

 

Saturday, February 27th 2016

It’s Saturday morning and Allan cannot rise from the recliner. He is using his strength, exerting as much as possible, but he can barely move his body forward. That’s it, I’m calling for an ambulance, although he is protesting that he doesn’t need to go to the hospital. He will sleep some more and make another endeavor in a couple of hours.

No, I’m calling for an ambulance NOW! He seemed so much better the last three days, and especially last night, when he appeared to be his old self. I don’t understand it! I’m assembling various paperwork: a file with data on Allan’s doctors; phone numbers; records I’ve been keeping regarding his cancer treatments; I collect all of his RXs into a bag.

Two ambulance attendants – a man and a woman – are here, but Allan is still contending that he doesn’t need to be hospitalized. He’s giving the attendants a hard time. They are attempting to push him onto the stretcher, but he isn’t cooperating and I don’t know what the complication is. You would think these attendants would have it down, how to lift him or roll him onto the gurney, especially since Allan isn’t strong enough to obstruct them; he’s too weak to stand without the walker.

I can’t take it! I maneuver in between the ambulance attendants and I literally shove Allan onto the stretcher, with strength I never knew I had. I collect the paperwork, Allan’s meds, my handbag, and my phone. Once we are in the ambulance, I call Michael. He is astounded, because he agreed with me, that Allan looked so much better the last few days.

We are in Emergency, and I am just outside of the curtain, where Allan is lying. I am apprising Allan’s various medical conditions for a doctor. We converse about his esophageal cancer and the radiation that has weakened him to his very core.

Suddenly the curtain springs open and two doctors and a nurse run out and then back in, as I stand “half in” “half out” of the curtain, as to not be in their way but to see what the circumstances are that have caused the chaos and turmoil. There are two doctors and two nurses administering to Allan: his blood pressure has dropped to a dangerously low level, and they are also extremely distressed about his heart rate. Any questions they have for me are put to the side as they supervise and resolve how to treat these crises. During the commotion, Allan starts raving about Beaumont’s Caesar Salad! He also keeps asking for water – which he can’t have while they are performing tests.

“Would you please shut-up!” shouts one of the doctors. “We are trying to save your life!”

I’m not sure what’s happening, at this point. Nurses are running in and out; doctors are working to stabilize Allan’s blood pressure. I give one of the nurses Allan’s prescription bottles, which she puts into a large plastic bag, while I answer the occasional question. Mostly, I stay vigilant – watching the intensity – as if it was a film rather than real life. Allan’s diversion helps: only he would talk about food in the middle of a life-threatening moment!

I can’t believe any of this! Allan is the only one who isn’t distressed. I took some of Allan’s tranquilizers out of the RX bottle before giving it to the nurse, and I took two lorazepams, yet I don’t feel them at all.

Allan almost dies twice within six hours in Emergency – but you would never know it, looking at him. He has been unperturbed throughout the day and during the crises. He was upset when I called for an ambulance, but now that he’s in the hospital, he is calm and even seems cheerful, like he was last night. At one point, when I’m the only one with him, he tells me that he feels okay and knew that he wasn’t going to die. He reminds me, “I have a lot more living to do!” I feel like I’m the one who almost died twice within a few hours!

We have been in Emergency for over seven hours, and Allan’s medical condition, for the moment, is stable. One doctor and two nurses come in and out of the curtain, to keep an eye on him. I’m starting to feel very weak, so I take advantage of Allan’s stability and take the elevator to the Restaurant Level. I buy two turkey pitas and two ice teas, and take them back to Allan. One of the nurses allows him to have only a couple of bites from the sandwich, along with a few sips of ice tea, which he thoroughly enjoys. Only he could take such pleasure from so little!

I update Michael and he still can’t believe Allan’s in the hospital, or that he could have died this afternoon, had I not called for an ambulance. I tell him how fantastic Allan was feeling last night, that it was his best night, by far, in the last couple of weeks: physically, mentally, and emotionally. And then this morning, he’s too weak to lift himself up from the recliner. It’s incredulous. I tell Michael that I’m optimistic, hoping that Allan’s good mood replicates what’s going on inside of him, and that today turns out to be an aberration. I guess we will have to cancel his appointment with Meighan on Monday. I can’t believe this! What a nightmare!

I also talk to Joanie and Robbie. Joan is surprised but not worried; whereas, Robbie is acutely upset. I tell Joan that Allan’s condition is still critical but stable, and I suggest that she make a plane reservation, given that her father almost died twice today. Instead, she decides to wait, since he’s stable. She tells me she has a date for this evening, but to call her if there are changes in Allan’s condition.

It’s about 8:30pm and Allan has been moved to his own room for the night. He’s been napping on and off, for about an hour. I am told there’s a phone charger in the Visitor’s Lounge, so I leave him, briefly, to borrow the charger.

I walk back into Allan’s room and a doctor is there – he had just come by to check on Allan. He’s about to leave when Allan starts to tremble, again, like he did several nights ago. The doctor immediately orders Allan to be taken to the ICU; he informs me that Allan’s lungs are failing – he’s trembling because he cannot get enough air. I tell the doctor this occurred once at home, and that the lorazepam RX stopped his shaking. I can’t believe it’s because of his lungs! Oh My God!

Allan is transferred to a room in the ICU. They give him oxygen and are going to monitor his breathing and hope it soon stabilizes. Allan has a new doctor – who is blonde, calm, and lovely. I give Dr. Lovely the same information I gave to the doctors in Emergency. She advises that they will observe Allan attentively for the next couple of hours, but if he’s still struggling to breathe they will have to attach him to a respirator, because his distressed breathing is too taxing for his heart. The picture that pops up in my mind, immediately, is of Karen Quinlan, chained to a respirator, which looked like a giant computer and made awful gurgling noises back in those days – the mid-70s. Dr. Lovely explicates that if Allan has pneumonia or another type of infection, the respirator would be temporary, until the infection is contained.

I call Joan, to update her again, but it’s too raucous in the restaurant/bar, so she’s going to go outside and call me. I phone Robbie and he’s extremely agitated. When I tell him that I’ll be at the hospital all night, he resolves to meet me here tomorrow around noon.

It’s about 11:30pm and Dr. Lovely apprises that it’s time – his labored breathing has not improved and they cannot wait any longer. As I scrutinize a doctor and two nurses, who are preparing Allan for attachment to a respirator, I am stunned – tears are running down my cheeks – knowing that I may never hear his voice again. A nurse gives me a small box of Kleenex: I hate that I cannot control my tears! Dr. Lovely asks Allan for his permission to attach him to a respirator. Thank God, he acquiesces.

I am talking to Joan when Dr. Lovely walks by, so I ask her to clarify to his daughter why he needs to be hooked up to life support. She still has not decided whether to fly to Michigan.

A nurse proposes that I go to the Visitor’s Lounge for some rest, since it will take a couple of hours, as they are performing various tests and then attaching Allan to the respirator. I relocate to the Lounge, where there are at least six people, who look to be in their late teens or early twenties, sprawled out on couches, chairs, and even on the floor. There are all types of phones, iPads, and computers hooked up to chargers, as well. Everyone is sleeping. I find an empty chair and take one half of my sleep RX, to hopefully nap for a couple of hours. It’s clear that the next couple of days are going to be stressful and exhausting.

I sleep for close to three hours, and one of the physicians articulates that he came to the lounge to convey that Allan is stable, on sedatives, and attached to a respirator. He didn’t want to wake me because I looked like I was “out cold.” I didn’t tell him it was due to the RX. 

 
Traveling In and Out of Heaven
 
     I walk  into his room, and as I take his hand, I ask him: “Have you seen Mom and Dad?” His eyes almost pop out, and he squeezes my hand so hard that it hurts! We were extraordinarily fortunate to have parents who thought that nothing was more important than their children. We have all heard stories about people leaving their bodies: it could be a “near death” experience; traveling in and out of heaven; whether it’s a metaphor or there is a genuine “heaven.” Allan’s impassioned rejoinder discloses that he has seen our parents. It could be in a dream, or perhaps he saw the white light and our parents at the end of the tunnel. I think Allan wants me to know that he has seen Norman and Blanche Feuer in a magical place, and if our parents are there, it has to be heaven! 
             
            
                                               He tells me, he's traveling, in and out of heaven,
                                               I know it, I tell him, he's la creme de la creme.
                                               He tells me, he has years of more living to do,
                                               I know it, he shows it, for everyone to view.
                                               He tells me, it's been such a meandering road,
                                               I know it, we're fighting, to win this unfair war.
                                               He tells me, he's tired, and may be ready to go,
                                               I know it, I tell him, yet I still need him so.
                                               He tells me, he'll keep battling, alongside of me,
                                               I know it, I tell him, he will soon be set free.
                                               He tells me, he's traveling, in and out of heaven,
                                               I know it, I tell him, he's la creme de la creme.

        

                                  
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Reviews

"A gripping book that takes the reader on a dramatic rollercoaster ride!"

Peter Davis, Davis Reviews

                       

This exceptional book is much more than a touching story of a sister’s love for her dying brother; it also describes the dramatic and tragic family dynamics that took place behind the back of the dying brother.  There is a brutal sub-plot revealing the tragedy of his only daughter and ex-wife reaching for his estate before he dies, and even planning to hasten his death. This is a gripping story with the reader feeling like they are on a dramatic rollercoaster ride.  Although the story is intense, it is laced with delightful humor to give the reader a chance to catch their breath. 

 

This book is also a subtle but scathing criticism of the American health care system, that leaves the reader wondering how much control they have over their own health, and ultimately, over their own death, if they are in a similar position as the author and her brother. I highly recommend this book to anyone who has a family. You are in for the ride of your life!

"A Life Cherished"

CAFOXXYY Amazon Review

This is a very important book. It should be read by everyone who doesn't have a signed medical directive. It tells the story of a sister that tried to save her brother's life against all odds; even the daughter wanting to "pull the plug" to get the life insurance benefit. It's a story of her struggle to find the best treatment for her brother when doctors refused to discuss anything but chemotherapy and radiation. This book might save you a lot of heartache by guiding you to make the correct decisions and to fight for what you believe is fair and right.

 

"An Amazing Book!"

Maxwell Books - Barnes & Noble

This is an amazing book, with life-threatening medical and legal issues that could occur in anyone’s life. You cannot read this book without checking your own Will, to make sure that you have chosen the person you want to make decisions for you, if you are incapacitated, and to make sure that you have signed that form.

 

From the beautiful poem at the beginning, to the very last page, I reacted viscerally to every moment experienced by the author, because she makes you feel as if you are a part of her story.  At times it is devastatingly sad, yet there are many hilarious moments, due to her depiction of arrogant doctors and vicious and conniving relatives. The story moves so quickly, that I couldn’t put it down. Traveling In and Out of Heaven is a loving tribute to the author’s brother, but don’t be surprised if you fall in love with the author, because I did.

"One piece of unsigned paper can dramatically impact our survival."                           

EG's Reality Press

 

Why is it when we need the most love and understanding from our family, one family member challenges and destroys all the Author has diligently researched to save her brother's life. One piece of paper not signed made a dramatic impact on the lives of so many, bringing into focus the importance of documentation that needs to be signed in advance before a serious illness.
 

It's a beautifully written story about the love between a brother and sister. It still makes me cry and it still makes me angry and sad about people we think we know and trust, our family.

"I was riveted by this book!"

Rose Redmond

R&R Book Reviews

I was riveted to this book!  I could not stop reading it!  It made me feel like I was right there, experiencing what the author was going through. The story is beautifully written, with some poetry intermixed with pros. Elaine was an amazing sister: no one could have done more than she did, and it was such a huge loss. She is also one strong cookie and a powerful adversary. You will see the best and worst of human nature. That daughter will have someone treat her the way she treated her aunt and father.  That would be divine justice.  What goes around comes around.  

 

It is an incredible book and I have learned so much.  Some of the doctors in the book are arrogant bastards.  I have dealt with that type before.  They think they are God and we should accept their opinions without question.  I can assure you, that every reader will be doing their own research, after reading this inspiring book. I can see this narrative becoming a movie, because readers will feel that they are alongside the author, from the first page to the last.  I highly recommend it!

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Allan with Blanche & Norman Feuer

Dancing with my Dad!

Celebrating my birthday in 2009.

In Kingsville on Jan. 1st 2016, ten weeks before he passed on.